LOUISON est atteinte d'une microtie de grade 3. Les scanners ont été envoyés au Docteur Roberson (USA) et nous avons eu un retour favorable pour réaliser la canaloplastie.

Louison a un score de 7/10.

"Based on the CT scan, Dr. Roberson gave Louison's right ear a score of 7, which makes her a good potential candidate for atresia repair canalplasty. Congratulations! The three points taken off were as follows: 1 point off for a smaller than usual middle ear space, 1 point off for slightly abnormal middle ear bones, and 1 point off for the outer ear appearance, which is always the case in patients with atresia and microtia."

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LOUISON voudrait entendre et bien sûr (pour ne pas dire "surtout") avoir une "nouvelle" oreille. A 9 ans, elle vit mal les moqueries des autres enfants et  le poids du regard des adultes qui fixent avec insistance son oreille dans les files d'attente etc... 

"However, because of the good score, we highly recommend canalplasty either as part of the combined procedure or a separate procedure prior to Medpor reconstruction, as the sound quality is far superior to the other options."

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LOUISON devra donc subir une lourde opération pour son atrésie et sa microtie de 7 à 8h et une convalescence de 5 semaines (interdiction de prendre l'avion durant cette période).

"When the canal is created simultaneously with the Medpor outer ear surgery (CAM), this surgery typically lasts 7-8 hours. Patients are seen for post-operative visits over 4 weeks after the date of surgery before returning home, with appointments split between Portola Valley and Los Angeles."

Le coût de l'opération est de 99000$ soit 85000€.

"The cost of the operations is $48,100 for the canal surgery only, or $99,000 for the CAM surgery."

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Dr. Roberson has also created a series of online video lectures in order to give families an overview of atresia, and a better understanding of the CT score and treatment options available. The lectures can be accessed in French at the following link: https://www.atresiarepair.com/live/index-fr.html.

International Center for Atresia & Microtia Repair

CEI Medical Group

1900 University Circle, Suite 101

East Palo Alto, CA 94303

650.494.1000

www.atresiarepair.com 

https://www.facebook.com/atresiarepair

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